When Fred went through his first transplant in 1999 he did not actually get his new liver until the third call. UCLA first called us down and had us wait in the ER while their surgeons evaluated the liver. After a few hours (which seemed like a day), they told us to go home. The liver in question was too fatty and not suitable for transplant.
We were completely new to the idea of getting a call that wasn't THE CALL.
The second call in 1999, Fred was called down to the hospital and was admitted right away. He was started on IV anti-rejection medication, but was told that the liver came from a donor who had brain stem cancer. That there was a miniscule chance the cancer could be transmitted from donor to recipient, and that they only offered a transplant from a donor with cancer to a recipient who currently had cancer. Fred was told that someone had jumped over him and was now #1 on the list who also had cancer. This anti-rejection medication and preparation was to get Fred ready for transplant should the surgeons discover Recipient #1 had cancer outside the liver -- this liver would go to Fred as a backup. Fred unflinching said he hoped #1 got the liver. And that is what happened. They unhooked Fred and told him to go home.
The third call was Fred's liver. It was the one that was meant to last him all these years. The third call, he was admitted and brought to OR with no hesitation.
Well, this morning, we had our dress rehearsal for Liver #2. We got a call from the on-call transplant coordinator for KUMed at around 7:30am. She said they were in the very early stages of dealing with the organ procurement agency and had been notified a liver was available. She wanted to know how far away we were from the hospital and told Fred not to eat or drink anything until we heard back. Then she updated us for Fred to take his meds and have a light breakfast. She said it could be a while until they knew more. Stand by. So we did the drill. Shower. Pack. Clean. Pray.
At about 10:30 this morning we got the call that the surgeon was evaluating the liver and for Fred to NOT eat or drink anything else. She would call us back in a couple of hours. But only 20 minutes later KUMed called to say they were sorry. The liver that was available was not suitable for transplant.
Feeling grateful for our prior experiences, which kept us cool as a couple of cucumbers. And, we were definitely relieved to see Fred pop up on their radar.
Ok, he's next. Oxoxox
ReplyDeleteIt's going to be soon...miss you and love you both. xxoo❤️
ReplyDeleteThanks Kate and Sheri. That's what we hold on to. ♡♡♡
ReplyDeleteOh wow! Dress rehearsal means opening show soon! This is great news. Prayers on overdrive!!!!
ReplyDeleteAny new news, Karen?? Thinking about you.
ReplyDeleteHi Jeanette!
ReplyDeleteWe have not had any other offers, so not the news you are looking for. We just got off the phone with the transplant coordinator. Fred's latest blood work is good. She let us know that he is still at the top of the list but they have not had other offers for his size and blood type. She said this is not the norm but for us to hang in there. So we will!
Good news is my sister is coming for a quick visit to spread love and cheer. We pick her up at the airport this afternoon.
Love you and miss you terribly. Kisses to everyone for me.
Sorry that it's taking so long. Like Tom Petty sang, the waiting is the hardest part. Will continue with an abundance of good juju. I'm in North Dakota with Rick, visiting Nick. We fly back home on Monday. Hoping your sister brings good cheer and a phone call to get your good selves over to the hospital for a transplant! Love you TONS!
DeleteYes, Jeanette, the waiting is the hardest part. (I love that you quote Tom Petty, btw.) But it's been so good to have Sheri here.we forgot how important that human connection can be.
DeleteGlad to hear you and Rick could get away to visit your brilliant son. I saw the video you posted of him piloting the plane. Wow!
Xo
Karen, I've been reading and trying to keep up with your posts. Sending all my best to you and Fred as you wait. I wish I had magical powers, but all I have is love. Sending it all to you!
ReplyDeleteOh, Beth! It warms my heart that you are keeping up with our adventure. Thanks so much for the love -- what better magic is there? Love you!
DeleteWish I (and Scout) could take a road trip and visit. Hang in there, you've got all your beautiful friends' support, love and prayers.
ReplyDeleteThinking about you guys everyday! xoxo Chris
Wouldn't that be great! Cuddles to Scout (We miss our babies so much that I am on the verge of volunteering at a rescue.) Xo
DeleteIt's been great seeing him. He was awarded a scholarship yesterday and today got to fly in an old war bird. Good weekend to be Nick Meyer! We leave tomorrow so I'm already getting sad about leaving him. For how long is Sheri visiting? XO
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ReplyDeleteWe're beginning the countdown until our trip to Kansas City! So glad Sheri was able to spend some good old fashioned "sisterly" time with you. We're arriving too late to see you on the 13th, but you will wake up to find a text message telling you we arrived! Love XOXOX
ReplyDeleteHi Karen. I have been following the journey, in the wee hours of the night, and saying lots extra prayers for you and Fred. I want you guys to know how important you are in all of our lives. You are an inspiration to us all.
DeleteI am hoping that the blessing of a great match is on its way. You are missed. π
Hugs,
Saundra
Hi Karen. I have been following the journey, in the wee hours of the night, and saying lots extra prayers for you and Fred. I want you guys to know how important you are in all of our lives. You are an inspiration to us all.
DeleteI am hoping that the blessing of a great match is on its way. You are missed. π
Hugs,
Saundra
Ah, the adventures of Fred & Karen & sista Sledge! Thanks, Karen, for the candid, informative blog! Praying fervently & purposefully for Fred's donor to come SOON!
ReplyDeleteMissing you so much it hurts! You are loved, my friend. Your absence has left a hole in our whole community. That's how much we all love you. It's wonderful to hear your aunt & uncle are coming to visit. Awaiting blessings from KUMed! πππ
Hiya Frankie. I can't believe I didn't see this. Keep the prayers and love coming. They are like a nice blanket on a cold day. Such a comfort. Thank you!
DeleteI'm sure the community is getting along fine in my absence but kind of you to say. KCMO is lovely, but this experience has made me realise just how much I love my life in Burbank. XO
Hiya Frankie. I can't believe I didn't see this. Keep the prayers and love coming. They are like a nice blanket on a cold day. Such a comfort. Thank you!
DeleteI'm sure the community is getting along fine in my absence but kind of you to say. KCMO is lovely, but this experience has made me realise just how much I love my life in Burbank. XO
Ah, the adventures of Fred & Karen & sista Sledge! Thanks, Karen, for the candid, informative blog! Praying fervently & purposefully for Fred's donor to come SOON!
ReplyDeleteMissing you so much it hurts! You are loved, my friend. Your absence has left a hole in our whole community. That's how much we all love you. It's wonderful to hear your aunt & uncle are coming to visit. Awaiting blessings from KUMed! πππ